Welcome to the Alzheimer's Australia Younger Onset Dementia Forum

This forum provides a place where younger people with dementia, their families, carers and friends can gather and share information. It provides a place to share your stories, connect with others in a similar situation, ask questions and share information. To join the forum, click on the “join” button to the right of the screen.

What is younger onset dementia?

Dementia is the term used to describe the symptoms of a large group of illnesses which cause progressive decline in a person's mental functioning. It is a broad term which describes the possible loss of memory, intellect, rationality, social skills and normal emotional reactions. The term younger onset dementia is used to describe any form of dementia that develops in people under the age of 65. Dementia has been diagnosed in people in their 50s, 40s and even in their 30s. Dementia in younger people is much less common than dementia occurring after the age of 65. For this reason it can be difficult and sometimes a lengthy process to diagnose, however the latest prevalence figures show that younger onset dementia affects approximately 24,500 Australians.

HOPE is a newsletter for younger people with dementia, their care partners, friends, health professionals and care staff. It facilitates networking opportunities for all and welcomes contributions. It is also read by people working in a wide range of community based organisations, health and residential care service providers, hospitals, government agencies (local, state and federal) and the media. All issues of HOPE are published on the Alzheimer's Australia website at
You can also join readers in Australia and overseas who receive HOPE by email each time it is published. If you or somebody you know would like to receive HOPE via email, please contact us at hope.news@alzheimers.org.au. You can help make HOPE more interesting for your fellow readers by sending your story or suggesting a topic that you think will interest readers.